Support

It is amazing how much support is needed to put all the pieces together. Mental, physical, sensory, language, skills, logic, social, and on and on. It is a process that everyone with a child with disabilities goes throught, like or not. It is a lot of work to keep it going, however, is soo worth it!.

When we see them smile or finally "get it" your heart grows a mile. And then they do it again. At that very minute we forget the fights, struggles, battles, frustration, confusions and such. Until they happen again. And again. In a few words is bitter sweet.

Between school and State carlitos has a lot of services. I can surely see the difference they make in his life. Specially after jumping in the medicine world I think we appreciate more the efforts to find ways to make it better.

Today he did great. The morning was usual, in a good place and full clarity. Later when he cam back from school he had a chance to rest for a little bit and then later sat down with a daycare kid and did homework, he actually wrote a story. Did not complain about it or tried to fight it. It was really nice. After that played with some boys in the house, worked in his forever "garage project" and did very well.

His behavior coach came and was able to ask some questions and pick his mind a little bit. They played a game and he was able to keep composure the whole time. After that we rushed at dinner because is church night!! we ran a little bit and he went to his preteen class and did great. Came home close to 9:00pm went straight to his room. Asked once if he could play in the computer and I said....what??? NO!! go to bed!!. And he immediately put his pajamas on and was in bed in a second. That was it, the lights went out.

Such a full day, such a full life...